Tag Archives: eating-disorders

The Winds of Change

In the past few weeks, iaedp’s “Board” released an announcement advising its members that changes were coming and that the Board was launching a new initiative and strategic plan for the organization.

When I first read this, I equated this “major announcement” with the “major award” won by Old Man Parker in one of the best Christmas movies ever released, “A Christmas Story.” Visions of a fishnet stockinged leg lamp danced in my head.

However, the announcement, when it comes, will end up being quite significant, if not different than what the Board initially intended. Although iaedp has not yet issued its official announcement, the subject has become known in certain circles of the eating disorder community. And that is …

Bonnie Harken, iaedp’s Managing Director is … “retiring.” 

It is unknown whether she will also be stepping down as Chairperson of the Boards of Directors of all the “independent” corporate chapters. It is logical to presume that these positions will be included in her retirement.

Most people in the community know that I have significant issues with Ms. Harken and that we are in an adversarial capacity. But that should not diminish the accomplishments Ms. Harken achieved in the past.

According to her LinkedIn profile, Ms. Harken has been in the eating disorders treatment field since 1987. She states she was a founding officer of Remuda Ranch Centers serving as its Vice President until February 2002. Since February 2002 until two days ago, she served as the Managing Director of The International Association of Eating Disorders Professionals Foundation (iaedp). Certainly, twenty-one (21) years far exceeds the reign of any other leader of all other eating disorder organizations. Ms. Harken stated that she served many major eating disorders treatment facilities as a consultant.

In the past, she had a vision for eating disorder board certification. Under her leadership, this certification program was built. For that she should certainly be commended. She was instrumental in helping to bring information about eating disorders to the mental health community. 

However. 

After issues were brought to the attention of Ms. Harken and before the lawsuit was filed, Ms. Harken and iaedp’s attorneys attempted to deflect attention away from iaedp’s issues and stated their belief that the Morgan Foundation was operating illegally. This is generally known as a “straw man fallacy or argument.”

A straw man fallacy is the fallacious practice of attempting to refute an argument different from the one under discussion, while not recognizing or acknowledging the distinction. Ms. Harken failed to consider that in early 2020, I intentionally let the Foundation lapse.

Through my investigation and research, I found that there were people in the eating disorder community who instead of helping families, were hurting families suffering from this disease. I knew that to expose their conduct and get them out, I had to be aggressive and utilize social media and the court system. I had to become almost hated. I did not want my daughter’s name sullied with that which had to be done.

So, the Morgan Foundation does not, and has not solicited donations, accepted donations or co-sponsored any events since it closed. I regarded Ms. Harken’s attempt to use this to deflect attention away from her own alleged questionable conduct as a sin that cannot be forgiven.

To me, there are very few things/people beneath contempt. But, in attempting to take issue with, and besmirch the memory of my daughter is beyond all decency.

My daughter died after fighting eating disorders for seven (7) years. She possessed more courage, resolve and heart than people like Ms. Harken could possibly envision. However, Ms. Harken crossed the Rubicon of decency. For that, there can be no forgiveness. And that knowledge, that reality, hurts my heart.

Before the current situation, I was on a cordial basis with Ms. Harken. In fact, in one email she wrote:

“I have read Morgan’s journal entries several times.  I feel very honored that you shared those pages with me because I imagine the contents of her journal are so very precious to you.

My mother left me a diary that journaled her health issues for over a year before her sudden death.  She did not share the issues she was having with me or my brothers.  She did not seek medical help which I believe was due to the fact that my father had died four years prior and she didn’t want to go on.  Her diary was both a comfort and –sometimes– an agony for me.  So many feelings…  I am not comparing my experience for any other reason than to share that I know how precious those words on paper are and am so deeply touched that you shared them with me as someone you do not know.

I can’t even begin to fathom what feelings Morgan’s words stir in your father’s heart.

I have no context for her thoughts in terms of when she wrote them or how close it was to her death or the pages that precede or follow those you shared.  I do not need to know because the pages I read spoke to me of her journey from a “higher power” to the revelation that our Savior is real and a comforter who loved and cared about her even if she didn’t understand her own circumstances or feelings.

I read the pages repeatedly and thought about my own journey to Jesus and all I have learned since I began my imperfect journey nearly 40 years ago with a Savior who is real and present daily in my life.  I asked Him to guide my words to you.

My prayer is that my words comfort you. 

I do know this with certainty:  When Morgan closed her eyes here on earth, she opened them in the presence and love of Jesus.   Heaven is beautiful with colors beyond our imagination.  She is with God in perfect peace. 

God loves you and I believe He has a call on your life and your journey.”

One statement in that message is particularly poignant. “I can’t even begin to fathom what feelings Morgan’s words stir in your father’s heart.” No, Ms. Harken, you can’t. Consider yourself lucky that you can’t.

I wonder what happened to that person. The person who crafted those words. The person who crafted that message. It is that person I want to remember. That person who at one time strove to help others.  That person who made a difference. And yet, I fear that person no longer exists.

That person who could have remained an icon in the community … instead of an outcast.

iaedp’s crucible

“Life’s most persistent and urgent question is, what are you doing for others?” 

— Martin Luther King, Jr.

“We make a living by what we get, but we make a life by what we give.” 

— Winston Churchill

Iaedp’s Symposium 2024 has begun. As per its custom, this year it is being held in Orlando, Florida. To say the Symposium is completely engulfed by controversy and discord is an understatement.

Some BIPOC iaedp members chose to boycott the Symposium because of the Florida Board of Education changing the state’s standards on African American history in July 2023.

The iaedp petition calling for Ms. Harken’s resignation and revising the certification process, which was started by concerned iaedp members in December 2023, has reached 277 signatures. Until very recently, a reasonable inquiry would have been whether Symposium attendees would exceed the number of signatures on the petition. Purportedly, the numbers are close.

The on-going lawsuit. Complaints filed with state and federal administrative agencies and taxing authorities.

Iaedp corporate chapters demanding dissolution. Ms. Harken demanding that those chapters pay over to iaedp national, any monies those chapters may have in their meager bank accounts. Demands for the resignation of Bonnie Harken.

Iaedp’s Board of Directors have no members with any business or legal experience and did not even place Ms. Harken on Administrative Leave while they conducted an investigation. For that matter, did the Board conduct ANY independent investigation?

There is no doubt that iaedp is under increasing pressure from many different sources. It finds itself in a fiery crucible where irrelevancies and subterfuge are burned away thereby exposing questionable conduct and the flaws of human nature.

And above all, we as a community, cannot and should not be looking upon the inevitable dismantling of this organization and Ms. Harken with any satisfaction or pleasure. Schadenfreude should be so remote from our conscious thoughts or feelings as to be non-existent. 

Whether you agree or disagree with the lawsuit. Whether you have positive or negative thoughts or feelings directed toward me for pursuing this matter. Whether you believe or not believe that iaedp and the certification process needs substantial revamping … the sparsely attended 2024 Symposium should serve as a stark example of what could happen when we, as a community drift away from the sacred trust placed with our medical and mental health providers who treat eating disorders.

When NEDA was sued in December 2020, I pushed for an early mediation. My sincere hope was that improvements and positive changes could be made and that NEDA, yes would go through some difficult times, but would emerge more vibrant and stronger than before. In addition to the attorneys appointed by the Directors & Officers insurance company, NEDA also had an experienced, wise attorney who had been involved with NEDA for a number of years. That attorney understood the importance of an early resolution. And in less than six (6) months after filing, the NEDA case was settled. NEDA served and serves a purpose.

In past writings, I mentioned the great Chinese General, Sun Tzu. He believed that when you have your foe surrounded and their defeat is inevitable, you should offer that foe an honorable exit. And so it was.

With iaedp, an early resolution will not happen. Settlement offers have been made, the latest as recently as last week. Each offer has been met with silence. Iaedp also does not have an experienced attorney independent from the insurance providers to lend wisdom and knowledge of eating disorders. NEDA had and still has experienced business people on its board. Iaedp does not. NEDA had a semblance of oversight over its officers by its board, oversight which resulted in its former CEO and the person who mainly caused the damage to be let go. Iaedp does not.

Brantley is Whitfield. Whitfield is Brantley. Iaedp is Ms. Harken. Ms. Harken is iaedp.

I do not believe iaedp can, nor will, survive the investigations which may be conducted by state and federal authorities.

In this matter, a road to redemption was offered. And was not accepted.

The consequences for that lack of vision will inevitably lead to the conclusion from which Ms. Harken and iaedp are desperately running.

In litigation as in war, you achieve victory by engaging in a relentless, aggressive, well-orchestrated and carefully designed plan to obtain victory and deprive your opponent of the initiative. You make your opponent pay a price higher than it expected for choosing the path of war. In litigation, an attorney has the power of the legal system at his/her beck and call. Issuing subpoenas for relevant documents not just from the named parties but also from third parties and witnesses. Deposing people who may have information of relevant facts. Uncovering lies. Exposing fear, arrogance, greed and collusion. Discovering facts which support long held suppositions. Where necessary, including third parties as possible liable parties. Hundreds of hours spent on the process. The uncertainty.  The unexpected. For example, did United Behavioral Healthcare dare to consider that in the Wit case, it would lose its ability to control its own claims process and possibly must pay attorneys’ fees exceeding $3o million dollars?

The greatest truth to embrace, the truth that keeps one focused through this mighty process is the reality that people who suffer from eating disorders will undoubtedly benefit from this challenge. Families who suffer from this disease may find comfort and greater opportunities to heal. Fraud, and those who perpetrate it will at long last be exposed.

We must continually be looking forward, always forward. We must place our families who suffer from eating disorders first and foremost. As a community, our nondelegable duty must be to help those who are suffering. Somewhere on the path, iaedp lost that vision. It lost its way. And those who are supposed to be overseeing iaedp have lost iaedp’s mission… if not its very soul.

THAT is what the iaedp lawsuit is about. Trying to salvage a broken system so that more lives can be helped. To burn away the falsehoods and nonsense in the crucible.

That is the absolute reality which keeps one focused, which guides one through the turbulent days, weeks, months and years which lie ahead. Saving lives.

And so, as I previously plagiarized from Willie Bob Shakespeare, “Once more unto the breach dear friends, once more …”

The Old Gray Lady and Assisted Suicide

The New York Times was founded in 1851. In its long and storied history, it has been at the heart of important legal decisions pertaining to journalism and the freedom of the press. Since 1896, its slogan has been, “All the News That’s Fit to Print.”

For many Americans, the Times is at the forefront of their consciousness regarding the journalism industry. It is a major news outlet in the United States’ most prominent city. The Times often sets this nation’s news agenda.  All of which makes it that much more surprising when the Times lowers itself to publishing an outdated, tag along storyline devoid of substance and not current on the latest events on a crucial topic.

In this case, the January 3, 2024 article entitled, “Should Patients Be Allowed to Die from Anorexia?” To say that this article fell down the deepest well far below the Times usual standards would be charitable. In fact, this article could have jeopardized on-going debates, discussions and interactions which are currently taking place among mental health professionals on the highly controversial topic of assisted suicide and mental health, particularly anorexia nervosa.

The Times Article attempts to frame issues designed to draw the reader away from one of the most complex issues we as sentient beings face … our very mortality … and simplify it to a plug and play game devoid of any nuance, substance and morality.

The manner in which the Times article fails is legion. So, let’s address just some of its shortcomings.

First, the Times article comes across as a less informative follow up piece to the outstanding article written by Abby Ellin and published in the Washington Post on November 1, 2023. Ms. Ellin’s article was obviously thoroughly researched, and included information from doctors, research professionals, mental health advocates, families and people who have been directly impacted by anorexia’s deadly nature. It explored both sides of this highly volatile issue. Ms. Ellin’s article endeavored to stay current with the rapidly evolving events on this topic.  All of which are missing from the Times article.

The Times article was not current regarding events which have transpired on this issue since June 2023. It did not address retraction of certain articles, medical complaints being withdrawn, or the fact that a broad-based summit occurred in Denver, Colorado on November 17, 2023, or the fact that perhaps our mental health professionals are looking at new ways to address controversial topics. Instead of engaging in seemingly endless academic articles ping-ponging back and forth, face to face respectful engagement took place. Professionalism. Mutual respect. All this important information was missing from the Times Article.

The Times Article focusing on Naomi’s story was understandable. Her story is compelling. How can we not sympathize with her? Her story touches our heart. Her story and the extreme issues and measures she has faced in her life are designed to attract readers and perhaps gain support for assisted suicide for mental health issues. And yet, her story is not representative of the millions of people suffering from anorexia nervosa. There was no counterbalance showing those people who are greatly suffering and yet who are still scratching, clawing and fighting for life.

Now make no mistake. Palliative psychiatry is a topic that has arisen as an important topic of discussion and worthy of studied research and contemplation. However, the Times Article takes this topic and renders it fodder for click bait. If people are looking for substantive information on this topic, the article fails. No mention of criteria or guidelines. No mention of studying biological or more objective signs of mental impairment.

The Times Article also failed in that it did not address the ever evolving understanding of possible biological causes of anorexia nervosa. It did not address the fact that we do not completely understand the biology and neurobiology of anorexia nervosa and accordingly no treatments have been developed, tested, and approved that specifically target the underlying biology. Genetic factors? Nothing. The Times Article also does not address recent research indicating prolonged starvation damages the gastro system and impoverishes the microbial ecology making recovery more painful and more difficult.

The Times Article did not address alternative and evolving medical measures being utilized to treat anorexia.  For example, Ketamine, Psilocybin, ECT: (electroconvulsive therapy), TMS: (transcranial magnetic stimulation), tACS: (transcranial alternating current stimulation) DBS: (deep brain stimulation). After all, don’t our medical and mental health professionals have the duty to explore all viable treatment options before beginning that journey which leads to the end of life? The article failed to explore this issue.

The Times Article unfairly portrayed Dr. Joel Yager in an unflattering light. Dr. Yager virtually attended the November 17, 2023, summit. He heard inspirational stories of heartache and resiliency from Linda and Jack Mazur and heartfelt apologies from Dr. Gaudiani to those who may have been hurt. He not only heard from but collaborated with some of the leading eating disorder experts in attendance that day. He heard the term “Terminal Anorexia” is being abandoned. He heard the commitment from all in attendance to preserve, to work together, to address this volatile topic in a compassionate, intelligent collaborative manner. As such, we are certainly justified in questioning why Dr. Yager was portrayed in such a cynical manner. Was the Times Article accurate in asserting Dr. Yager questioned the ethics and competency of other psychiatrists?  Whether they had become “zealots for the model.” Whether Dr. Yager was ambivalent and equally accepting whether Naomi lived or died. Whether Dr. Yager stated, “Yager told me that he does not regret what he wrote. ‘The main point is that some people die from the disease,’ he explained.” I believe that type of cynicism could not be generated from the Dr. Yager who participated in the November 17, 2023, summit.

The Times Article did not include information about the plenary panel session to be conducted at the International Conference of Eating Disorders in mid-March in New York City. This panel includes Dr. Gaudiani, Dr. Westmoreland, and others, with all sides of this topic to be discussed in a professional, open forum. This highly volatile, emotional, potentially divisive issue which touches our very existence deserves our highest compassion, intelligence and collaborative work. The Article failed in addressing this.

The New York Times is sometimes referred to as the “Gray Lady,” or the “Old Gray Lady.” Initially, the Gray Lady was a term of affection, meaning that the Times was deserving of respect, of measured intelligent thought. This article was the antithesis of the Times past standard.

With at least one of its photos in the article deserving of both a “trigger warning” or inclusion in the National Enquirer, this article was not worthy of being called investigative journalism. The Article took a complex, emotional issue … life or death, and relegated it to a lurid standard that makes “yellow journalism” appear erudite. Even the birds in my birdcage would be offended if I used this Article to line their dwelling.

Perhaps showing that the Old Gray Lady just ain’t what she used to be … many long years ago.